Archive for September 26th, 2011

Children and Young People with Down syndrome – achieving their communication potential

We are delighted that Sue Madraszek of Symbol UK will be presenting at the Towards a Positive Future Conference on 14/15 October 2011 www.towardsapositivefuture.wordpress.com

Sue’s presentation will give information about the typical communication profile of children and young people with Down syndrome. It will explore the implications this has on how parents, health care staff and educators should interact with these children and young people in order to develop their full potential in the field of communication and thus enable them to access educational and other settings successfully.  Participants will gain knowledge about this population of children and young people and be shown some very simple ways of making interaction with the children and young people more effective as well as learning about how to encourage these children and young people to communicate effectively, thus achieving their communication potential and supporting them in reaching their potential educationally and socially.

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Why Martyn Sibley is taking part in the Towards a Positive Future Conference

Martyn Sibley http://martynsibley.com/ is a social entrepreneur with one aim – to change the world for disabled people. Using his personal experience of being disabled: Electric wheelchair user, having 24/7 care, a Masters degree, world travel and his own company – he has written an ebook on achieving life goals – The Disability Diamond Theory (launching mid September 2011). He has managed to build a worldwide community of 10,000 people online and works to inspire, inform and change. In running his blog, launching the positive disability magazine http://disabilityhorizons.com/, and with his creation ‘disability webinars’ he is making good progress. He is speaking at the conference to answer questions around his personal story as a disabled child: including matters such as schooling, transitions, leaving home, going to university, finding work and managing independence.

Martyn is just one of the contributers to our forthcoming conference www.towardsapositivefuture.wordpress.com

Martyn 300x199 Why Martyn Sibley is taking part in the Towards a Positive Future Conference

Here he shares why he is taking part:

“The 2 things that enabled me to go on and achieve so much in life was having a good education, alongside having the right support. Inclusion should be at the heart of disability matters, but investment in the necessary resources must be provided. I want to share my personal experiences, with a rounded awareness of other impairments, to explain why inclusion and education can go together. I hope to encourage parents to aim high for their children, and show professionals there is always a way.”
 
“I am speaking at the conference to answer questions around my story as a child: schooling, transitions, leaving home, going to university, finding work and managing independence. This conference is vitally important because parents and professionals need to understand the current issues faced around SEN and work together to ensure the disabled people of the future can thrive and not just survive.”
 
“My talk is about my personal experience of disability. With a great deal of theory, legal and political talk; I will bring the human part and reality to what the reforms actually mean. I can show with the right support anything is possible.”
 
“Personally I am very fearful of the social care reform implication. Meanwhile I can see some positives in the aims of the reforms (streamlining processes and funding streams), however I have concerns of the actually reality they will bring for disabled people. “
 

 

 

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The Social Competence and Enhancement Programme (SCAEP) – Sandy Burcbach – Speech and Language Therapist – Shapwick School

sandy burbach The Social Competence and Enhancement Programme (SCAEP)   Sandy Burcbach   Speech and Language Therapist   Shapwick SchoolEffective therapeutic interventions, in any discipline, have always depended on a careful identification of the factors comprising the presenting problem; the systemic processes shaping, and shaped by, the child; and the information and belief structures supporting the coping strategies developed as a result. For the Speech and Language Therapist, difficulties in the acquisition of social communication skills frequently signals the presence of a wider range of language, emotional and educational issues, all of which could be impacting on the child`s potential for independence, integration in society, educational attainment and long- term mental health. As a result, social communication work is often an integral part of programme delivery, and much time and energy has been devoted to the development of the many excellent resources available to address social communication needs in a range of settings and client- groups.
Shapwick School is a specialist day and boarding school for pupils (8yrs – 19yrs) with dyslexia, DCD, ADHD, developmental verbal dyspraxia, sensory processing difficulties and other related disorders. Approximately 70% of our pupils attend weekly individual and/or group Occupational and Speech and Language Therapy sessions and all new students are screened by both therapies on entry. The Therapies are seen as an integral part of the school`s multi-disciplinary approach to the educational process and are involved in all aspects of the school`s functioning. We take the view that, while language and sensory processing difficulties impact on every aspect of our students` lives, they can be remediated or compensated for most effectively when a unified approach is applied by the whole system- school/ college, parents, students and their peer group. Systemic thinking is by no means new in education or therapy, but its application often presents a thornier issue as daily life interferes with theory! I feel it is vital that we at least acknowledge that every decision or action we take, as teachers, clinicians or parents, will have a knock-on effect on every other aspect of our children’s provision, and ultimately the child’s decision- making. As social communication is about making decisions which affect oneself and others, the ability to recognise chains of reaction is a cornerstone of the SCAEP approach.
The Social Competence and Enhancement Programme (SCAEP) was formally introduced about 8 years ago as a weekly group session for students with identified social skills difficulties. It drew on a range of materials from published social skills, emotional literacy and pragmatics programmes and ran for two terms every year. Other forms of medium and short- term interventions (e.g. Circle of Friends; “Pitstop” ) were also regularly used in the rest of the school in response to perceived need, but varied from year to year and were often driven by the needs of specific pupils or contexts.
However, over the last 5 years I have become increasingly aware of three important factors which seem to be impacting on the long- term carryover that our students achieve in real- life situations, when trying to apply the principles they have worked on in SCAEP group viz. 1) In many cases the severity of their sensory processing problems, literacy, working memory and language needs interferes with their access to language- based social skills interventions. Co-working between Occupational Therapy and Speech and Language is becoming increasingly vital in laying the sensory processing groundwork to support our social communication work across the school. 2) Our students have marked difficulties in connecting the ideas and concepts contained in social skills programmes with their own understanding of how the world works. Many of them have difficulties with theory of mind, but also with basic semantic issues such as categorisation, so that identifying social similarities and differences becomes a language test rather than a coping strategy. These difficulties appear to have a particular impact in Yrs 8/9, when the opinions of the peer group assume primary importance, and has resulted in the complete reworking of SCAEP delivery at Shapwick School. 3) At the same time, there is an increasingly alarming body of research emerging from different clinical, psychiatric, educational and criminological fields indicating a significantly high incidence of literacy, social communication and language difficulties amongst young people with severe mental health problems and in the justice system. My concern is that if the sensory processing problems of our students have such a fundamental effect on the development of their cognitive constructs, and if many of our students cannot fully access remediation programmes on offer because of language difficulties, then they are also prevented from accessing the mainstream talking therapies on offer in the NHS. This raises the issue of where our students will go for support as adults.
In the current climate of continuous cost- led reform, there is a temptation to sit tight, rely on existing resources and protect our personal fields of influence. It is vital that we do not lose sight of the fact that our disciplines exist as a result of need, and that meeting those needs continues to rely on an expanding knowledge- base and willingness to share, adapt and apply principles from related fields in order to fine- tune our work and counteract some of the effects of continuous instability in the systems we live and work in.
My workshop will outline the key features of the SCAEP programme and describe an attempt (in progress!) to design a multidisciplinary intervention which serves three purposes: 1)Taking students back through the sensory building blocks of basic social communication concepts e.g. personal space, in order to construct more complete concepts /schemas based on sensory processing of, and shared attention to, key sensory characteristics; 2) The development of sensory and language correlates (shared code) needed to describe participants’ experiences of (mis)communication and to develop verbal problem- solving strategies and an understanding of chain reactions; 3) The core language and sensory building blocks to understand analogy and metaphor, allowing students to compare how a situation appears to them and someone else, and improving our students` potential use of talking therapies e.g. CBT, family therapy etc.

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What 10 things make the most difference to the families of children with special educational needs

When editing the forthcoming book ‘ Towards a Positive Future: Stories, Ideas and Inspiration from children with special educational needs, their families and professionals’ there were 10 things that cropped up repeatedly in the personal stories of the 14 families featured that made a positive difference to their well-being and the educational and life outcomes for the students.  These are:

  • having a clear description of all of the child’s needs
  • schools and services that focus on the child’s abilities and strengths
  • productive activity for the child throughout the day to promote learning rather than a differentiated but meaningless curriculum
  • safe, secure, appropriate physical environment which minimises the disability for the child and enables them to learn
  • integrated therapy and teaching
  • a positive and close relationship between parents and school
  • social care working in partnership with parents and schools
  • appropriate individual specialist programmes available as part of the curriculum
  • appropriate medication and nutrition available in school
  • access to specialist solicitors, barristers, advocates, representatives, expert witnesses and tribunal to achieve all of the above as early in the child’s life as possible

The book is available to pre-order from www.jr-press.co.uk and will be launched on Friday 14th October 2011.  To book your place at either the Book launch, the Conference or both please go to www.towardsapositivefuture.wordpress.com

 

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